Our HLA typing came back today. Valentine is a 11 out of 12 match. This means that, if we need to, Valentine can be a donor for Riker. This is not without risks, however. Our next step is to go out to the registry and see if there is a 100% match out there for Riker. There will be choices to be made, either way. We'll just need to wait until our consult with Boston at the end of the month.
It amazes me. Even though Riker, Jon and I are O+ (blood type), Valentine is A+. If she were do donate her stem cells to Riker, Riker would also have A+ blood. This caused me to think about other genetics. She'd still have the genetic coding for O+ blood. The genetics she'd be passing on to her children... Can she still have children... Maybe not. Wow... I suppose I shouldn't think that far ahead.
This is all so scarey... take everything day by day. Don't think to far ahead. Then there's suddenly hope. The oncologist spoke of gymnastics and dance some day. Dare I hope? He mentioned that she'd eventually have her lines out and she could go swimming. 3 weeks ago, I didn't think she'd every have a bath again. What a rollercoaster we've been put on.
Wow I just found your blog and I just read the whole thing and cried more times then not! I couldn't imagine the things you and your family have had to go through. I am so glad that they caught it early but I am so sad that such a small infant harmless child has had to go through this. I had my 2yr old in the hospital while she was 8 months old and I felt so bad for my then 3 yr old because I couldn't bee there for her too and we were only 10 minutes away. Where do you guys live norway area or lewiston/ auburn area? just wondering because I would like to maybe have your 2 yr old become friends with my 2 yr old and they could play and she could maybe take her mind off things? I know you don't know me from jack but I would do this in a heart beat for people like you guys seem so wonderfull and nice! My email is beccandicky2005(at)yahoo(dot)com. I would love to hear from you guys. Oh and we live in the norway area! Please even if you need to talk to someone that has absolutly no connection to you and your fammily I would love to listen for you! Your child are beautifull and I see a long happy life for both of them! My thoughts are with you and your beautifull family! ~Becca~
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