Tuesday, July 19, 2011

July 19, 2011 - Day #46

On Thursday we go to Boston for consult. Then we will get our questions answered - I hope. The thought of going to transplant has me completely on edge. The idea of transplanting bone marrow, of replacing someone's blood is completely unnatural. Unnatural and wonderful. Unnatural and very very scarey.
A successful transplant does not mean we're safe - it does not mean that we will go home and live happily every after. The road is so long - how long? I don't know. And there is so much risk. So many things that could kill Riker that have nothing to do with the transplant at all. She will be on drugs that will suppress her immune system for a long time. I don't know how long. I do know that the smallest exposure could be fatal to her during this time.
We have decided that we need to move. Our house is not safe and our daughter's life is too precious to risk it. I'm not sure how we'll make this happen but we will make this happen. The only questions are how quickly this will need to be done. We'll know better after our consult. For now, I wait.


  1. We are here for anything you need!!!

  2. Praying for your beautiful baby to get well and beat this horrible disease