2 months, 2 weeks since diagnosis
day #19 of current hospital stay
Sometimes the doctors are idiots. Today, the nutritionists came to see me. Now first, I want to say that Riker is doing awesome. She is taking her bottles and she is putting on weight. She is hitting her milestones. She's not ahead - but she's not really behind, either. I would not say that she needs or is even ready for solid foods. She's definitely not interested in what I'm eating and has just started to hold her head up really well. Transplant is only weeks away and she's likely to feel very sick and reject food. I don't want to start solids only for them to become unpleasant next month and have to start over. Breast milk will be the best for Riker through chemo and transplant - it has all the nutrients that she needs and is more gentle on her stomach.
That being said, first of all, they wanted to start solid foods. Nope - not doing it. Next? They want me to freeze my milk in 6oz bags. What? They don't even make bags in that size that I know of. Plus, she's drinking frozen milk from June. She'll be drinking the currently frozen milk well after transplant. The bottles can be made in larger amounts - it doesn't matter how much frozen milk is in a single bag. I told them that we'd already been making 6 oz bottles but she never takes more than 4 1/2 oz or so. We can't force her to eat more and she's gaining weight! ugh.
They told me they are concerned because her weight gain has slowed. (she gained 3 oz last week instead of 4). They said they do a 'baby bmi' as a ratio of height to weight. The last measurement of height was a lot larger and now the ratio was off. Are they kidding me? Now they're upset because she is growing longer? She's gained over 2 lbs since she's been in the hospital? I honestly asked them if they remembered that she has cancer and that she's just come off of chemo. We should all be doing a celebration dance - not worrying about her very adequate diet.
Finally, her oncologist said that if we weren't going to start solid foods, we should at least give her some cheerios. Honestly? I just continue to shake my head. He is concerned that she won't develop her pincher grip. My goodness, she can barely grab and hold her teething ring. Babies don't usually start finger food until they're 9 months old. Certainly not until they've at least had some very watered down baby food. I decided to humor them on this one. Not because I thought it was necessary - just because I thought it might be fun for her to play with a pile of them. It was fun and she was totally uninterested in the entire ordeal.
I wish they'd all just focus on curing her damn cancer and let me deal with her diet. I am doing just fine and they don't need to butt in until there is problem.