5 months, 3 weeks, 6 days since diagnosis
71 days away from home
Clinic went well today. Riker's potassium levels remain high but all of her other blood work came back perfect. We're scheduled to come back next week and if everything remains stable, we can have our next visit a the Maine Children's Cancer Program in Scarborough Maine. If Riker remains completely stable, we're going home.
We'll have to drive back down the week after for another visit, but, we'll be able to go back to Maine for two full weeks! Finally, we've made it here. Riker is back to her normal self and we'll be able to be a family again.
For a while, we'll need to come to Boston every other week and we can do every other week at MCCP. Eventually, we'll do more visits in Maine and less in Boston. I assume that we'll keep coming pretty frequently to Boston as they manage her cyclosporine levels and start weaning her next month.
For now, home will be with my parents. We're having someone clean the house and we'll try to find a new normal until we can be in our own space again. This is not optimal but it's far better than the way we've been living for months. This is going to be good.
We're still very hopeful that we'll hear about the house soon. More likely, we'll have to wait until January for an answer but we're still hoping. In the meantime, we'll be together and it's a step closer to being where we want to be. Right now, there's only one real thought on my mind.
We're going to be home for Christmas!