Friday, November 11, 2011

November 10, 2011 - Day 40

5 months, 5 days since diagnosis
day #49 of current hospital stay

Riker's pain is not being managed well. When she is not sleeping, she is screaming. She doesn't get IV morphine until she's over the top upset. I want to see her getting pain meds before she is so hysterical. It's so difficult to see her in so much pain.

It's complicated because Riker is being weaned from morphine. They want her on the smallest dose possible. She's also not "narcotic naive." She metabolizes the morphine very quickly and she needs more of it than she used to.

When the night shift came on, the nurse was willing to give her IV morphine but warned me that she won't be able to get IV morphine at home for an ear infection. I told her that I don't think it's her ears that hurt at this point and if she needs IV morphine, she's not ready to go home! I sure hope she feels better tomorrow because I am not taking her home if she's still in this much pain!

Josh came today and we moved a few things into the Ronald McDonald suite. It's very small but there are two beds and a kitchen. We'll be able to make our own meals and it will feel a little more normal. It will be a tight fit and there won't be much privacy but it will be worth having the comfort of being so close to the hospital.

If all goes well, we'll be all moved in the suite tomorrow :)

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